Last Minute Leap-of-Faith (and Leap To France!)

P1010679-1  

I won't entirely believe it until the airplane actually takes off to Paris with me inside.

We made a spontaneous, last minute, leap of faith decision and bought tickets last Sunday to leave for a month at our house - La Maison des Chaumes in Burgundy, France this Sunday.

It has been such a weird year with my health (you need a transplant! No! Wait! You're still far too healthy for a transplant! But you do need to go to the hospital again!) that I feel scared writing those words, as though I'll jinx myself and I'll land myself on an IV drip rather than on an airplane in three days time.

Still...my PSC specialist in Calgary encouraged me to travel now. He said, "Sure, you can get sick and end up in the hospital, but that can happen just as easily while you are sitting at home in Victoria as in France." It would suck to be sick in France, but at least I would have the satisfaction of knowing that my kids are visiting with their cousins and grandparents and friends and having a lovely time in Burgundy. Besides, I spent a week in the hospital in Beaune after having Clementine and as far as hospitals go it is a pretty sweet place to be - three course meals, coffee and petits gateaux that come by on a trolley every afternoon...I was waited on hand and foot and actually read Ken Follett's "Pillars of the Earth" from cover to cover in the six days following my C-section.

Living with a life-threatening illness has taught me many things over the past three years but the lesson that I keep circling back to again and again is that I have to live for the NOW. Also, shit happens in life. Sooner or later, pretty much everyone will encounter their own personal shit storm. All anyone ever has is The Present (yes, with capitals) - ill or not. We must throw fear to the winds and tackle that sucker. It is, as far as I can tell, the only sane way to live life.

So I thought to myself, "Eff it. Let's at least try." Then I pressed the "purchase tickets" button on the Air Transat website. Ready.Fire.Aim. That's my motto.

So for the next month I will be eating cheese, baguettes, pastries, looking longingly at the wonderful wines I can't drink, taking a gazillion photos, soaking up every moment with my beloved French family and friends, scoping the markets and the vide-greniers for antiques...I may also have a little sejour in Beaune's Club Med (aka the hospital) but that is OK.

This may delay the publication of My Grape Year by a few weeks. Right now it is in the hands of my copy editor. Once I make those final changes there is really little else to do. I am taking my laptop with me but my goal for this vacation is play, not work, so I'll just see how it goes. It will be published soon though - very soon...I am so excited to hear what you think and I am determined to craft the best possible story for all my fantastique readers.

In the meantime, of course, this gives you a little extra time to gain some additional entries for my "Race Me to La Fin" contest. I am receiving several emailed entires per day and rest assured they are all going into my 'contest' folder and are being counted. In particular, I am only four reviews away from hitting 200 reviews for My Grape Escape so if you could write one to receive yet another contest entry I would love you forever - promis!

I will be posting photos and snippets of our Burgundian adventures on my author Facebook page, my Instagram account, and my Twitter Feed (where yesterday two of my writer idols - Cheryl Strand and Elizabeth Gilbert 'favorited' one of my tweets...verklempt).

In life and in travel my new mindset is not to strive for a perfect vacation or a perfect month, but rather to be on the lookout for perfect moments. This is just another version of Franck's Aunt Renee's petit bonheur du jour approach to life that I describe in My Grape Escape and which resonates with so many readers.

I will gather up and cherish these perfect moments like the shards of beach glass I collect. They are the closest thing I have found to capturing eternity in my hands.

A Little Note About My Chaotic Brain & Reading Order in my "Grape" Series

FullSizeRender.jpg I swear to god, I am not trying to confuse everyone. It's just that my brain resists operating in anything resembling a linear fashion. Now that there will soon be three books in my "Grape" series I realize I need to clarify their chronological order.

Most readers understandably thought my next book in the series would be about Franck and I and an apartment in Beaune. After all, the last few lines of My Grape Village go like so...

That'd what I learned here. The French were instinctively good at living in the moment. At the same time, I knew that the lesson was far from over for me. In fact, it had barely begun. But what path could I follow next? 

"You know what I think would rent really well?" I turned my face so that I caught Franck's eye.

"What?" His lips curled into a smile.

"An apartment within the medieval walls of Beaune."

As you can see, it would not be a huge leap of deduction for my readers to assume this next book would be about Franck and I buying and renovating what would become Le Relais du Vieux Beaune.

What can I say? I write whatever story is clamouring the loudest to be told at the time I write my rough draft for the National Novel Writing Month (or NaNoWriMo) every November.

This past November, it was not the apartment story but rather the story of how it all began that was being by far the loudest and the rowdiest. It was what was to become My Grape Year - the story of that pivotal year when I was seventeen and sent to Burgundy as an exchange student. That year completely altered the course of my life, particularly a certain Spring evening in Nuits-Saint-Georges when I met a certain Frenchman named Franck.

My Grape Year ended up being crazy romantic (so much so that I am seriously considering banning my parents from reading it, or at least my Dad) and a sheer pleasure to write. When I was struggling with the stress, uncertainty, and just sheer merdique-ness of my current health challenges these past eight months, writing My Grape Year was a daily exercise in gratitude for the incredible moments that I have been privileged to experience so far this time on the human merry-go-round.

All my editors and readers have told me that in their opinions this is the best book yet in the series, which is extremely gratifying. I have high hopes that my readers will enjoy reading it as much as I enjoyed writing it for them.

The apartment story is also clamouring to be told, and who knows? It could be next. I already have the title to that one - it's called "My Grape Town".

If you are interested in having a peek into my anarchic brain, here is what I have as my mental list of books in the "Grape" series. This may or may not be complete...

My Grape Year (soon-to-be-published)

My Grape Paris (about Franck's and my year living in Paris)

My Grape Escape (published)

My Grape Village (published)

My Grape Town (maybe next project???)

My Grape Baby

There will also be several novella-sized additions - around 40,000 words each I am estimating. These would be "My Grape Wedding" (could be next Grape project too...clamouring pretty loud these days and I already have an outline), "My Grape Cellar", "My Grape Quebec"...however, any one of these could bloom into another novel-sized book. That has a tendency to happen.

I am trying to figure out a name for a novella-sized memoir...a memoirette? What do you think? Do you have any suggestions?

But, for right now once I have published My Grape Year the reading order will be 1. My Grape Year, 2. My Grape Escape, and 3. My Grape Village

Clear as mud?

Also, don't neglect to enter my Race Me To La Fin contest to win a free week in Burgundy, the birthplace of not only Franck and Clementine, but also of all of my Grape adventures so far.

Now I must be off to email my copy-editor! I won't rest until I get My Grape Year into your hands (or on your Ipad or Kindle!).

 

 

Special Bastille Day sneak peek at MY GRAPE YEAR

French national flag  

In honour of Bastille Day tomorrow here is a little excerpt from the VERY soon-to-be-published My Grape Year.  If you could like to race me to the finish of this latest instalment in my "Grape" series, just enter my contest to win a free week at the Grape Rental of your choice in Burgundy.

This excerpt comes near the end of the book, when Franck and I spent the entire night dancing at the 14th of July balls in Paris the day before I had to fly back to Canada.

***

A few hours later, Franck and I were nestled in a brasserie in the Sixth arrondissement. We just finished a dinner of a goat cheese salad, steak frites, and fromage blanc. This was all washed down with a strong house red, which made me teeter between joy and sadness every few seconds.

He reached over and checked my watch. “The balls will be starting.”

We paid up and stepped out into the Parisian evening. Every cell in my body rejoiced at how I was actually living this moment – French cars whipping by honking at each other, the warmth of Franck’s arm around my shoulder, the muggy air of Paris in the early summer, the whistle of firecrackers being set off by kids in adjacent streets, the jingle of a few francs in my pocket…

Better yet, I understood everything that was happening around me – every expletive yelled by the pedestrian who had just been cut off by a mobilette roaring around the corner, the chatter of lovers chatting at a café table we passed, the waiter taking an order…this was an entirely new life I was living and it hadn’t, in the grand scheme of things, taken that long to create.

Franck led us along several dimly lit back streets.

“How do you always know where you’re going?” I asked. “You never even look at a map.”

“I walked a lot when I lived here,” he said. “Kilometres and kilometres every day. There was always a new adventure waiting.”

We could hear the noise of the fire hall several blocks before we arrived. The street echoed with the sounds of laughter and loud accordion music.

People were spilling out of the courtyard of a large stone building. Strung across the courtyard in a half-hazard fashion were strings of multi-colored lights. A wine stand was set up at the rear of the courtyard and its menu was simple; a glass of red or white for the price of ten francs.

People were already dancing, young and old, chic and bohemian. Franck ordered us each a glass of wine served in plastic goblets. We sipped as we watched the festivities erupting around us. The night was warm, and tiny stars began to light up the sky like sparks. I put my empty glass back down on the table and Franck followed suit. He swept me into the middle of the dancers and we lost ourselves in the accordion music. He spun me around and around until the revellers surrounding us became a blur and I felt like a small part of a much greater whole. Nobody in the crowd hung back on the sidelines. If they had no one to dance with, they danced anyway, and were soon swept up into the frenzy of celebration.

We humans need this, I thought. We need to let go of the routine of our everyday lives and just celebrate the mere fact of being alive. The French were awfully gifted at that.

Soon Franck took my hand, and led me out of the writhing mass of dancers. We walked for about ten minutes, laughing and enjoying the site of the fellow revellers out in the streets before we ducked into the next fire station for another glass of wine and into the whirlpool of another celebration.

The night stretched out from fire station to fire station, from neighborhood to neighborhood.

At about five o’clock in the morning, the sky began to pale, to welcome a new day. The day I dreaded since I met Franck. The day I had to leave him.

“I know a brasserie not too far from here that is open all night,” Franck said. “Should we go and rest our feet?” Mine were throbbing from all the dancing, so I agreed.

In the brasserie we huddled together on the leather seat. I inspected my blisters, which were impressive, both of us agreed, and we snuggled as we waited for our order of two large café au lait with croissants and jam.

The chime of a church bell rang six times.

“That was the bell at Nôtre-Dame,” Franck said.

Normally I would have loved that fact, but it only drove home that my time left with Franck was no longer measured in days, but in hours and minutes.

“You’ve gone quiet,” Franck observed.

***

 

"Race Me To La Fin" Contest - My Grape Year

IMG_0536 I am deep in the throes of putting the final touches on My Grape Year - my tres romantic prequel to the bestselling My Grape Escape and My Grape Village and the third book in my "Grape" series.

My Grape Year invites readers back to the very beginning of the "Grape" story when I was sent to Burgundy for a year as a 17 year old exchange student. That year I learned French, developed a passion for Burgundy, and met my true love...the latter, much to the consternation of my hosts and in direct breach of the "No Dating" rule.

At the moment, I am juggling beta-reads, formatting, copy-edits, consulting over cover design, etc. etc. and basically just trying to put together the best possible book for my lovely readers.

It is not easy to estimate when I will be done, but it will be soon. My goal was to have My Grape Year published by the end of July, but realistically I think it may be more around the first week in August...however, you never know. Whenever I can hit that "publish" button - trust me - I do not hesitate!

Like I did when I was finishing up My Grape Village , I've decided to throw a little race for all of my readers, largely to motivate me to keep pushing on until My Grape Year is in your hands or on your Kindle, Ipad, etc....

The prize is a 7 day stay at your choice of any of our "Grape Rentals" - our four lovely vacation rentals in Burgundy, France (which has just been designated a UNESCO world heritage site!). This stay can be redeemed at any time, subject to availability and can also be gifted to the person of your choice if you cannot get to Burgundy.

To enter, this time you have a choice of things to do!

For any one of these tasks accomplished, you gain an entry, so if you do three things on this list, you get entered three times...Just click on the links below to be taken to where you need to go:

1. Write an Amazon.com review for My Grape Escape

2. Write an Amazon.com review for My Grape Village

3. Write a Goodreads review for My Grape Escape 

4. Write a Goodreads review for My Grape Village

5. Join my mailing list

6. Like my Facebook Author Page

7. Post a photo of either or both My Grape Escape & My Grape Village on Instagram with the hashtag #amreading

8.  Post a photo of either or both My Grape Escape & My Grape Village on Twitter with the hashtag #amreading

When you have accomplished as many of these tasks as you like, simply email me at [email protected] to let me know which actions you have taken and I will enter you as many times as applicable in the contest.

Don't wait, as it will be over as soon as I hit the "publish" button for My Grape Year! Bonne chance!

 

 

 

 

 

 

 

No Pearls Without Grit

Perle 08 There is a book I believe every human being should be gifted on the day of their birth. It is Viktor Frankl's "Man's Search for Meaning."

One of my favourite quotes from the extraordinary story of how Viktor Frankl kept his spirit intact in the unfathomable horror of a Nazi concentration camp has been a beacon for me during these past three years of living with my PSC diagnosis:

"Everything can be taken from a man or woman but one thing: the last of human freedoms to choose one's attitude in any given set of circumstances, to choose one's own way." 

If you have read any of my past blog posts you will know that throughout these past three years I have been terrified, bitter, furious, jealous, and confused in turn as I try to co-exist with my PSC. I have also been grateful, humbled, touched, and inspired. Such is the paradox of living with a rare disease, or in fact living with any of the myriad of challenges life constantly lobs at our heads.

Do you know what a pearl begins with? A pearl begins with a humble piece of grit - an annoying irritant that the oyster coats with layer upon lustrous layer of nacre in an effort to protect itself from the unwanted invader.

PSC is the grit that invaded my life completely out of the blue three years ago. What I choose to do with it - the meaning I create from my adversity - are my pearls.

I cannot help but bring my all-too-real human emotions and reactions to my PSC experience (and, no, I'm not going to call it a 'journey' or a 'gift' because everyone who has an illness gets to the point where they want to sucker-punch the next person who utters those platitudes).

People say I am brave, but I'm so not. I wake up pretty much every morning terrified that PSC will rob me of the privilege of seeing my daughters grow up, meeting my grandchildren, traveling the world, and writing all those words I have in my head and my heart. There are so many things about my PSC that I cannot control. Instead of accepting this with wisdom and serenity you will usually find me off in a corner somewhere freaking the eff out.

However, I realized that I can still have all these unpleasant, disorienting emotions roaring through me (and mine roar LOUD) and still make a choice about my attitude. I have failed utterly at making myself more zen and accepting, but I can still choose to use my PSC as a catalyst for positive change.

Some days this is as simple as making time to have a good chat with one of my daughters or just giving them an extra long hug. One day I lent a fellow parent change for a parking meter at the field hockey pitch where my youngest was playing. He tried to pay me back at the end of the practice and I was like, "Are you kidding? Pay it forward." It is all about being more generous, being kinder, and being more compassionate to the people around us.

PSC was also the catalyst for finally committing myself to writing - one of my true, life-long passions. I began writing the morning after my PSC diagnosis and didn't stop until I published my first book ten months later. Last year I finished my second book and I plan to publish my third next month. I have taught writing, creativity, and self-publishing workshops and connected with an incredible community of fellow writers and creatives. It is hard work, but I love every minute.

My priorities became extremely simple as soon as I found out I had PSC - my three daughters, my husband, my family and friends, and my passions. Doctors made it clear to me, often in a brutally blunt manner (as it happens, I have Much To Say about certain members of the medical community needing to take humanity lessons but that is another blog post for another day...) that my PSC could kill me. There is also the possibility that I could get a transplant and do well. The huge gray swath of uncertainty between these two eventualities is where I have been residing for the past three years. This is a place where there is no time for pretending to be anything but my true, authentic self.

All these things are pearls that would never have formed without PSC being the grit at the core of it all.

From the beginning I have been public about my PSC diagnosis and as a result my eyes were opened to the fact that most people around me were also struggling with adversity - sometimes illness (mental or physical), sometimes grief, sometimes abuse, sometimes life that just hasn't turned out the way they envisioned.

Adversity, I realized, isn't something that should (or can) be avoided in life. Adversity IS life.

It is what we do with our adversity that defines who we are and how we live. We can be scared, terrified even, yet still choose to create positive change. The fear doesn't go away, but it also becomes fuel for making good stuff happen. Instead of wasting energy trying to eliminate adversity (impossible - you can trust me on this - I have spent my whole life trying) concentrate instead on actions which allow you to transcend it.

I have always wanted to write, so I began to write and, more importantly, finish and share what I started. I also wanted to raise money for PSC research which as anyone in the PSC community knows is desperately needed. Before I even published my first book I decided that I would donate 10% of the after-tax royalties of everything I wrote to the wonderful PSC Partners organization for PSC research. Yesterday I sent in a donation of $2000 - not my first royalty donation and certainly not my last. If I can play even an infinitesimal part in finding future PSC treatments and maybe one day a cure then voila! Another positive change. Another pearl.

When PSC Partners introduced their patient registry last year I immediately understood what a crucial tool this was to speed up the research for PSC. I began to advocate (some would say 'nag relentlessly') on the PSC Partners forums for everyone with PSC, or every caregiver for a person with PSC, alive or deceased, to take the 15 minutes it takes to sign up. The registry has an amazing potential to accelerate and expand research currently being done for PSC. I believe in the registry with all my heart and see this as one of my main missions.

I also advocate for organ donation wherever and whenever I can. I harass people to sign up to be organ donors, to consider live donation, and lastly, for governments to consider adopting policies such as presumed consent and hospital-based organ donation teams that have proved so effective in countries like Spain and the Scandinavian countries that organ waiting lists have become practically obsolete.

A high school friend who lives in the States messaged me out of the blue to say that she donated a kidney to a fellow parent at her children's school in part because of my social media postings. To think that because of something I posted or wrote that a father is now living free of dialysis and can look forward to a healthy, active future with his children...a gigantic pearl.

We can't choose to live without adversity but we can choose to use our battles as ignitors and accelerators for making the world a better place for everyone.

Without grit, there are no pearls.

 

 

Things You Like

IMG_5497.JPG One of my latest Saori weavings on the chair and pillow I found at Value Village. He he he. 

***

Here are two lists for your afternoon edification:

Things I Should Like: running marathons, cooking healthy meals for my children, using my time efficiently, drinking green smoothies, reading highbrow literary fiction, playing board games, getting my accounting in order, vacuuming my house, watering and weeding garden, meeting new people, ironing...

Things I Actually Like: wasting time, eating chocolate, drinking coffee, beachcombing, writing, Star Wars geekery, crystals, saori weaving, painting, napping, reading Regency Romance, consignment shopping at Value Village and similar stores, talking to my children...

These are by no means complete lists and, let's face it, pretty much every adult life is full of obligations where one is  forced to pull on one's big girl / boy panties and simply do what is necessary. I have to undergo a lot of unpleasant medical exams, sit through many an unwanted doctor's appointment, knuckle down and complete the endless paperwork that comes with being on disability, edit my books when I feel like painting, pay attention to Franck when he explains the new Excel spreadsheet he set up for my writing revenue and expenses (bless), et cetera et cetera.

However, we all have at least SOME spare time. My life has changed radically since I stopped filling it with activities plucked from the first list and instead filled it with things from the second, Things I Actually Like.

I am preparing my part in the Moonrise Creative "Unlocking Your Creativity" workshop this Saturday which I am SUPER EXCITED about (just sayin'. Oh! There's another thing I love! Workshops!). I will be leading a bunch of free writing exercises to help unearth our creative selves and free them from the blockages that hold so many of us back. One of the favourite prompts that I have come up with is: "Here is a list of things that make me happy."

On Saturday, I am going to preface this writing prompt by clarifying that this should not be a list of "things that should make me happy" or "things that other people think should make me happy" or "things I wish made me happy" but actually "THINGS THAT MAKE ME HAPPY." There is a vast and crucial difference.

The list should by definition be quirky, bizarre, humble, grandiose, illogical, and unique...you know...kind of like you.

I have no idea why Star Wars geekery makes me happy, but it has from the time I saw Star Wars IV at the Cineplex Odeon when I was six years old. I have no idea why I love shopping at consignment stores ("treasure hunting" as I think of it) but I have ever since I started a part time job and began earning my own pocket money when I was a teenager. I no inkling why I was designed to be a writer, but besides being born with the "what if" gene I remember writing a short story when I was seven about my Scottish great-grandfather Fletcher and my cat Pandora dying and feeling transcendent when I finished it, and even better when my teacher wrote that she cried when she corrected it.

I always tell my girls this, "Pay close attention to what makes you feel happy and make a mental note. Then, find ways to incorporate more of that into your lives."

But then, take board games...I simply cannot make myself care if I win or lose, and frankly would rather shoot myself in the head than embark on a game of Monopoly. I just want to sit around and talk to people.

Ironing makes me want to punch somebody and the only time our iron is ever taken out of the cupboard is for craft projects. As a result it reeks of melted plastic (Clem's melty bead phase) and probably is no longer fit for clothes anyway.

No one has solved the celestial mystery of why we love what we love, but being honest about what makes us happy and incorporating as much of it as possible into our lives can be transformative. A life created for the irreplaceable you is so much richer than a life created for someone you are not, but think you should be. It is so much happier. 

I can't wait to learn on Saturday about the things that makes the workshop participants truly happy. How about you? What things do you actually like?

And, to quote one of my favorite lines from The Princess Bride, "This is for posterity sake, so please be honest."

 

 

The Best of The Worst of Me

Close-up of old typewriter It's been a rough few weeks. After getting out of the hospital in March and finishing ten days of IV antibiotics for my liver infection I enjoyed five weeks of feeling like A Million Bucks. Well, not other people's version of a million bucks, but a significant improvement on the Varying Shades of Shite that had become my norm. Dammit, I'd take it!

I finished editing My Grape Year, arranged the photo shoot in France for its cover, planned a Creativity workshop for the end of May I am super stoked about, even wondered if I may be able to make it back to Burgundy in July. Then, about six weeks after my IV treatment, I started to slide slowly but inexorably downhill. Nausea, increased pain and discomfort in my liver area, fatigue, weakness, and random fevers. It basically feels like a combo of the stomach flu and the actual flu that waxes and wanes throughout my waking hours. There are no longer good days and bad days, but rather good hours and bad hours, or often, good minutes and bad minutes.

The whites of my eyes are no longer white but rather pale yellow and I'm sure the results of my last batch of bloodwork are going to be pretty horrific. I'm still waiting on the doctors to get back to me with A Plan but I know that sooner or later I am heading towards another all expenses paid stay at Club Med. On top of all that, I'm also nearing my yearly colonoscopy / gastroscopy and my 6 month MRI - always stressful as they look for all variety of nastiness that could disqualify me from a potential liver transplant.

So...yeah. Basically a shit sandwich.

I wake up every morning with a lead weight not only in my liver, but in my soul. A lot of that is physical pain and discomfort, but even worse, I think, is the mental anguish, particularly the intense, crushing anxiety.

I have been thinking a lot about my lifelong struggles with anxiety and the lifelong struggles that so many of my fellow writers have with anxiety. Just for the record, not all writers are headcases - a minority are remarkably sane - but frankly, most of my favorite ones have a bit of the headcase in them.

I see some people deal with serious illness and am amazed at how they just power through and DO.NOT.WORRY.. They do not try to project the future, they do not second guess, they do not doubt...they just decide on an outcome and never mentally sway from that path. How I wish I could be like that.

Instead, I was born with the "what if?" gene. What if they run out of antibiotics that work on my liver infection? What if they find cancer? What if one of my varices ruptures? What if I am approved for transplant but my potential donors can't get vacation time off to be assessed? What if I get a fever when I am supposed to be getting the colonoscopy? What if I die? What if I live? What if, what if, what if, what if, WHAT IF?

Not only is my brain obsessively asking 'what if' all the time like a needle on a skipping record, but it also concocts and projects fully fleshed-out scenes of the various 'what if' scenarios - good and bad. Me being told by the doctor that my PSC has morphed into cancer, me waking up from transplant feeling like I've been reborn, me being counselled by the hospice people as I prepare to die, me on the stage at a TED talk after a successful transplant talking about how creativity saved me...it's all there in turns - the terrifying and the galvanizing, the wretched and the glorious.

Lately, I long to muzzle this overactive 'what if' drive on my brain, but no amount of meditation, gratitude journaling, sessions with spiritual healers, or reflexology seems to be doing the trick. The truth is nothing in my life (and I have tried pretty much everything) has ever changed that aspect of my mind. The 'what if' is as much an innate part of me as my brown hair or my love of the ocean or my fear of knives.

But that 'what if' has a flip side. Without the 'what if' I wouldn't remember my past in terms of scenes and stories and be able to write about it vividly in my memoirs. Without the 'what if' I wouldn't be able to concoct a paranormal romance between a winemaker and a mermaid, as I am doing right now for my first work of fiction. Without the 'what if' no writer would be able to write but because of the 'what if' so many of us writers live with anxiety.

My 'what if' gene is the perfect example of a human paradox; the worst part of me is also the best part of me.

Without 'what if' I would not be waking up every morning with that lead weight of anxiety in my soul, but without my 'what if' I would not have writing in my life as one of my strongest lifelines in these stormy seas.

My reflexologist gave me an interesting idea last week. She said, "how about you try writing down little scenes of your life after a successful transplant?"

I have done that in a little (turquoise) journal - a little snippet per day. I'm surprised at how it is the little things that capture my imagination - not the TED talks as much as being able to volunteer to take Clem's class to the beach, without worrying I may have to bail due to a fever or nausea or a hospitalization, gardening with Franck without needing to rest on the couch, not having to tell my girls I need to head to the hospital again...a normal life - god how I will treasure it if I am lucky enough to get it back.

I am tired of fighting against my essential self. My anxiety, for better or for worse, will probably always be a part of who I am. I am going to invite my 'what-ifitis' on this journey with me, instead of making it stow away in the life-raft. I'll let you know how it goes.

 

Excerpt from My Grape Year

Rapsblüte  

I found myself chuckling when I was editing this scene, which is always a Nice Thing. This excerpt begins halfway through the scene (it is a pivotal one, and I need to keep the first part a surprise until My Grape Year is published).

Laura (moi) is late for her speech at an Ursus meeting in Beaune but my once pristine white speech outfit is now covered in mud thanks to an impromptu standard driving lesson from Franck which resulted in getting his father's car stuck in the mud. Let me know what you think!

***

I realized that even though I had no idea how we were ever going to get the car unstuck, let alone get me to Beaune in time, there was nowhere I would rather be than where I was at that moment. I wasn’t supposed to drive and I wasn’t supposed to date and I certainly wasn’t supposed to fall in love but as I looked into the caramel and green flecks of Franck’s eyes, I knew that it was too late.

Je t’aime aussi,” I said. We couldn’t close the distance between us fast enough.

Some time later a rattling cough interrupted us. I spun around to see a wizened man standing at the mouth of the woods in moth-eaten woolen overalls and a threadbare sweater, leaning on a twisted walking cane. He looked as though he belonged in a fairy tale.

Bonjour,” Franck said. “Perhaps you could help us.”

The man’s eyes roved over the scene in front of him, missing nothing. “I have my doubts,” he concluded.

Franck ignored this. “I’m not exactly sure where we are. Could you tell me the the nearest village?”

The man jerked a thumb over his left shoulder. “Villers-Fontaine is over there. Two kilometers.”

“Our car is stuck.” Franck slapped his hand on the roof. “I was teaching my girlfriend how to drive a standard-“

“That wasn’t what you were doing.”

“Well…that’s what we were doing before we got stuck,” Franck clarified.

The man raised a bushy eyebrow.

“I don’t think we’ll be able to get the car out,” Franck said. “I’ve tried everything I can think of.”

The man wandered casually over to the front of the car and studied the front wheels. “You should never let women drive,” he said, at last. “Dangerous.”

I bristled. “I can drive just fine. I’m just not used to driving a standard.”

The man looked at me again, again cocking a skeptical brow.

Franck placed a placating hand at the small of my back while I crossed my arms over my chest and made a sound of displeasure. “We’ll just have to walk to the village and see if we can get a drive,” I said to Franck. “Or at least use a phone. We have to hurry though-”

“It’s a small village,” the man said. “Not certain you would find somebody home.”

“We’ve tried everything,” Franck gestured helplessly at the mud-mired tires.

The man tugged at the neck of his sweater. “What about stones?”

“Stones?” Franck said. “I hadn’t thought of that, but wouldn’t they puncture the wheels?”

“Not if they’re flat and positioned correctly,” the man said, poking at the front tire with his cane.

Franck and I both scanned the woods around us. The only stones I could see were the two enormous boulders placed to mark where the road entered the wood. I was quite certain that several men couldn’t lift them.

“I don’t see any stones,” Franck spoke for both of us.

“Ah!” The man shook his finger at us. “That’s because you young people do not know where to look.”

The silence stretched on for a weirdly long time, and the elfin French man seemed to be relishing every second of it.

Alors?” Franck finally prompted.

“Come.” The man plunged into the woods, using his cane to whack away errant branches obstructing his path. “Suivez –moi.”

Franck followed him and seeing as I was still holding his hand, I did too.

“What if he’s crazy and he’s taking us in the forest to kill us?” I hissed after the trees became denser and began to obscure the afternoon light.

Franck paused, looked pointedly at the crooked figure disappearing in front of us, then back at me. “Laura. Please.”

He had a point. “Sorry. No insult intended.”

“None taken.” The twitch of his mouth confirmed this.

We followed the man deeper and deeper into the woods until the bright spring day disappeared entirely underneath a tunnel of bushes and trees.

“I always seem to get into strange situations like this with you,” I observed.

“I attract them. Ask any of my friends.”

The man finally stopped and beckoned us over to where he was standing.

Voici!” he declared. “I bet you never would have found this by yourselves. He pulled aside a chunk of bushes with his cane to reveal a mossy wall that seemed to continue on the other side of the bush.

“Why is there a wall here in the middle of the forest?” I asked what I believed was the obvious question.

The man fixed me with brown eyes that looked black in the dim light and shrugged. “Gallo-Roman of course. Been here long before these trees were planted.” He nodded to a cluster of trunks nearby.

Franck inspected the smooth, flat stones wedged between the layers of bright green moss of the wall. “These might work.”

The man nodded. “Take a few each and carry them back to the car. You’ll see. They’ll work.”

I stared at the wall and then back to the man who was waiting, tapping an impatient forefinger on the gnarled top of his cane.

“But if the wall is really Gallo-Roman-,” I began.

“Do you think I’m lying?” the man demanded.

“No. I’m just not used to stumbling on Gallo-Roman walls in the woods where I live."

“Where do you live?” the man asked, indignant at the sacrilegious idea of woods which did not contain Gallo-Roman walls.

I glanced at my watch, which confirmed my suspicion that we didn’t have time to get into the whole Canada conversation if we had any hope of getting me to Beaune, muddy or not.

I waved my hand towards the sky above the treetops. “Not near here.” The man narrowed his eyes at me, clearly regretting his offer to help a non-Burgundian.

“What are you waiting for?” the man asked. “I don’t have all day.”

“We can’t dismantle a Gallo-Roman wall!” I burst out. To even think of taking apart a wall that had been built in the third century was a travesty.

Our wizened leader snorted. “It’s hardly like this is the only one in these woods. They’re everywhere.” He waved his cane around. “Besides, the Romans probably made this wall out of stones they stole from a Neolithic wall. Terrible thieves, those Romans.”

Roman thievery notwithstanding, I would not remove a stone from the wall, nor would I allow Franck to do it, Ursus speech be damned. This wall would be in a museum back in Canada. I would take no part in destroying such a piece of history.

Luckily, Franck solved the impasse by crouching down and finding several flat, smooth stones that had fallen off the wall and landed on the ground. “I think these will do the trick,” he said. “Are you OK with taking these Laura?”

“I guess,” I said. They were just on the ground, after all.

“No difference,” the old man grumbled, but ultimately approved Franck’s selections of stones.

We headed back to the car, each with several stones in our arms. When we got there our unlikely helper brusquely instructed us in their correct placement under the car wheels and gestured at me to stand far away from the car while he signaled to Franck when to rev it up. I rather thought this was less from fear that I would get even dirtier, and more from the suspicion that the proximity of a woman would throw a pox on the whole delicate operation.

Franck revved the car up and within seconds it came flying up on the rocks and out of its mud trap.

Franck drove it several meters further until it was well out of the muddy forest. The man gave a grunt of satisfaction.

“Thank you for showing us the rocks,” I said, eating a large slice of humble pie.

“You young people aren’t very clever,” he noted. “It makes me worry about the future.”

I tried to ignore this bit of rudeness. “Well, I think we learned something today.”

He harrumphed again. “Tant mieux.” He lifted his cane in a perfunctory good-bye and limped into the woods once again.

Franck was walking back into the forest to meet me.

“I thanked him,” I said when he’d reached me. “He said that our generation isn’t very clever and that it worries him.”

Franck took my arm and shouted merci and au-revoir to the man’s receding back. He didn’t even bother to turn around.

“Maybe he’s deaf,” I said.

“More likely he’s just run out of patience with us imbeciles.”

“I think you’re probably right…are we that stupid?”

Franck leaned down and kissed me. “Maybe love makes us stupid,” he said. “If that’s the case I’m quite at peace with being an idiot. Now come on, we have a speech to get you too.”

Sneak Peek at My Grape Year

IMG_9902 I apologize for my absence from the blogosphere recently. I have found that single-minded focus is required to finish a book and my latest, My Grape Year, is proving no different. A little Spring Vacay in the hospital thanks to my sick liver set me back several weeks, so I am now channelling all my available energy towards editing, getting the right photo, designing the cover, and publication.

My goal is to publish this prequel to My Grape Escape, and the third book in my "Grape" series this June. To thank you for your patience, here is the first chapter as it stands right now. This still has to pass through the hands of 3-4 more editors and a copy-editor before it is published, but it gives you an idea of where I'm going with my story! P.S. I chose to go with American spellings, as usual, despite the fact it grates my Canuck soul! ;)

Enjoy and merci as always for your overwhelming love and support. Gros Bisous!

***

My Grape Year 

Chapter 1:

The men’s polyester pants were off-gassing in the stuffy hotel room. The scorched smell of synthetic fabric tickled my nostrils. March was generally a cool month in Victoria, so the hotel hosting the annual Ursus District Convention hadn’t anticipated the heat wave.

A makeshift fan had been unearthed and stuck in the corner of the room, but sweat trickled inside my navy wool blazer that was festooned with at least forty pins already. Pins were the currency of the incoming and outgoing exchange students and traded with the fervor of stocks on Wall Street.

The interview was almost over, thank god. If they liked me, I would get the final confirmation that I would be spending next year as an exchange student in hopefully my first choice of host country, Switzerland. There was only one available spot in Switzerland and it was hotly contested every year. Belgium, my second choice was better than nothing. Germany was my third choice but I knew I definitely didn’t want to end up in Germany. I had never found blond men attractive and I vastly preferred wine to beer. It was a crime that Italy, France, and Spain weren’t options. I could completely envision myself at some Spanish or Italian bar dancing on the tables after a night fuelled by Sangria or Prosecco.

“I see Switzerland was your first choice Laura,” the head of the table observed. Was? Not is? Every one of the ten or so men around the table had a copy of my application in front of them. “Can you explain your reasons for that?”

I had answered this question so many times in previous interviews that I could do it in my sleep. “One of my main motivations for going on a year abroad is to learn a foreign language,” I said. “Switzerland has not one but three official languages – French, German, and Italian. I would love to be exposed to more than one language during my year as a Ursus Youth Ambassador.”

The lead Ursunian cleared his throat. “That is an excellent answer Miss Bradbury. However, we just received the news that the Switzerland spot was nabbed by another district.” The men exchanged shocked looks at this breach of fair play between Ursus districts.

What? What about my fantasies of racing up and down the Swiss hills like Maria from Sound of Music and warming myself up with some lovely cheese fondue and wine in a wooden chalet afterwards, preferably with an entourage of handsome Swiss men? I would have to deal with my disappointment later. I dug my nails into my palms and smiled brightly. “I’ll go to Belgium then.”

“We do have several spots there. I just feel we should let you know though that more than half of them are in the Flemish-speaking part of Belgium.”

Flemish? I had been so sure I was going to Switzerland that I hadn’t even considered the possibility of being sent to Flemish-speaking purgatory.

 I flashed another smile. “Of course I would make the most out of any placement,” I said. “However, French is Canada’s second official language and growing up here on the West Coast I have always regretted the fact that I have never learned to speak it fluently. I hope to go to McGill University in Montreal so obviously French would be a huge advantage for me in Québec. If I could be placed in a French speaking area of Belgium that would be ideal.”

There was no need to mention that French had actually been my worst mark all through high school, and that I had to drop it after Grade Eleven because it was torpedoing my GPA. Or that I ran out to the quad after my Grade Eleven Provincial French exam and yelled “Thank God! I will never have to speak French again in my life!”

A slighter, balder man piped up. “You may not be aware of this Miss Bradbury, but there is no way for us to guarantee where you will be placed in Belgium. We send over the files for the incoming students and it is up to our Belgian brothers to allocate them as they see fit.”

I wasn’t aware of that, as it happened. I struggled to maintain my bright eyed demeanor.

“There’s always France, I suppose,” mused the head man, as though thinking aloud.

My head snapped over to him. “I understood there were no exchange spots available in France.”

He cleared his throat. “That was the case but there has been a…ah…development.”

A tall man at the opposite end of the table who had been picking something fascinating out from under his thumbnail jerked his head up. “With good reason!” he said, paying attention now. “Every exchange we arranged In France in the past has ended in disaster. The families didn’t even bother to come pick up our students from the airport, or suddenly decided that they were sick of hosting and locked the child out of the house or left on vacation without them. We couldn’t possibly jettison another student into-“

The head man cleared his throat meaningfully. “I have a letter here from the Ursus Club in Beaune, France." He waved the letter, which from what I could see was written in elaborate cursive with a fountain pen. I longed to get a closer look – it possessed a tantalizing whiff of the exotic. “They say that one of their students is being welcomed this year by our district so they would welcome one of our students in exchange. Just one student you see. It would be on a trial basis. They sound sincere.”

“Don’t believe them,” snarled the tall man. “I was President of our club that year our poor student was abandoned at the airport in Paris. He had to take a plane back to Seattle the next day. Try explaining that to his parents!”

“We must believe them,” the head man said. “Ursus spirit demands we must have good faith in our French brothers. Besides, Miss Bradbury here strikes me as a competent sort of person who can deal with extreme situations. I wouldn’t even mention the possibility of France to most of our outgoing students.”

“I…I,” I stuttered, wondering how I was going to disabuse him of this notion. I couldn’t imagine any horror worse than leaving for a year abroad only to have to return to Canada the next day with my tail between my legs.

“George.” The tall man’s voice was stiff with displeasure. “Throwing this nice young lady here to the French would be like throwing a lamb to the wolves and I for one-“

“Neil,” the head man said in quelling tones. “There is an open space for France and it needs to be filled. Miss Bradbury has explained how urgently she must learn French. She is mature and full of positive energy. I have complete confidence in her.”

What was the word for ‘shit’ in French? Merde? My mind whirred as I tried to find a way to extract myself from this fix.

But then I thought about the Eiffel Tower. Paris. Red wine. Little cafés. Baguettes. French men were supposed to be very charming, weren’t they? In any case, they had to be an improvement on Canadian boys. It could be a disaster or it could be even better than Switzerland. It was definitely better than spending a year learning Flemish. Screw it.

“I’d be delighted to take that spot in France.” I straightened my shoulders. “That way, at least, I would be sure to learn French.”

All the men except Neil nodded approvingly at me, as though I had just performed a heroic act. Darn. Had I?

The head man erased Switzerland and Belgium from my application and wrote “FRANCE” in large capital letters. He scrawled something down in his notes.

“That settles it then! You’ll be heading to France in August Miss Bradbury. I hope you have an excellent year, or shall I say, a bon voyage?” He chuckled at his own joke.

“Thank you,” I said. “Or shall I say merci?” This got a laugh out of all the men and they stood up and stretched their polyester clad legs to indicate that I was dismissed.

I must have missed the sound over the whirr of the fan and the muffled scrape of chairs against the carpet, but when I think back to it now I am convinced there must have been a mighty creak. There had to be, because at that precise moment my entire life shifted on its axis.

***

I'd love to hear what you think and if you would be inspired to keep turning the pages!

During this intense writing period for me the best way to keep up with what I am doing is to go to my Facebook page , my Instagram feed , or attend the fantastic day-long workshop I am hosting with my talented friend (and amazing painter) Laura Harris all about how to "Unlock Your Creativity." Go here to the moonrisecreative.ca website to learn more and sign up.

As soon as I have a firm publication date in June for My Grape Year you'll be the first to know!

 

 

 

 

 

 

 

 

 

 

 

 

 

Indie Interview with Moi

My lovely author friend Karen Dyer (writes as KC Dyer - check out her awesome YA fiction) just interviewed me for her "Indie Tuesday" blog segment. Watch for the upcoming self-pubbed release of her novel "Finding Fraser". I have had a sneak peek and it is ADDICTIVE - a must for anyone who loves humour, romance, and Outlander. Read below for my musings on self-publishing, rules for writing, and my visceral resistance to linear thinking! Here's the direct link if you'd like it.

INDIE TUESDAY -- WRITER LAURA BRADBURY

Hola! This week we have an Indie celebrity in our midst, in the form of Laura Bradbury.

Laura's forte is the self-published memoir -- and what a story she has to tell! It is filled with romance, intrigue, anxiety, high comedy and a whole lotta wine. Laura's 'Grape' stories are must-reads, and the reading community is getting the message. She's continually posting huge sales, as more people discover her warm, whimsical story-telling style.

Laura's also extremely generous with her hard-won knowledge and has really been helping me in my efforts to get FINDING FRASER out into the world. Let's hear a bit about her experiences, shall we? She's got a lot to share, so I suggest you get a cup of tea -- or a glass of wine! -- and enjoy!

KC: Are you an outliner or a seat-of-the-pantser when it comes to writing your books?

Laura: I am definitely more of a panster. I believe planning a book is easier with memoir than with fiction. Each of my “Grape” books covers approximately one year of our lives when we were buying and renovating a specific property in France so there is a very clear cut beginning and end point each time. Initially, I make a rough Excel spreadsheet  of bare-boned scene ideas. Then I write a quick and dirty ESRD (Epically Sh!tty Rough Draft) based on these scenes. The more I write the more my memory is jogged so I add a lot of scenes en route. Then I do a BIG edit where I break the ESRD into chapters and add in new ones I realize are missing (usually about one third of the total scenes). I am lucky that I have a crazy-good long term memory. I can’t remember what I ate for breakfast this morning, but the taste of blackcurrant in that glass of wine I drank fifteen years ago? I TOTALLY remember every detail. My next project after My Grape Year (the third book in my “ Grape” series) is a paranormal romance trilogy involving mermaids and fishermen. I suspect I will have to dramatically tweak my writing processs and do a more detailed outline for fiction writing. However, the way I learn things is simply by doing them (verus reading about them or having someone teach them to me) and figuring out what works for me through trial and error. I know outlining will be something I will have to force myself to do though, as I am highly resistant to organization!

KC: How did you choose your titles? 

Laura: The Grape Series all have “Grape" in the title I.e. My Grape Year, My Grape Escape, My Grape Village. The Grape is the emblem of all of our vacation rentals in Burgundy (which we call Grape Rentals www.graperentals.com). It is natural, authentic, honest, tied to the earth, and something humble that has the potential to be transformed into something sublime (wine). I liked the play on words with Grape / Great and also having “ My Grape…" repeated in my titles is a hommage to the wonderful “Little House” series that was my first exposure to memoir and one of the first series I fell for as a child. I love this quote which struck me so forcibly when my mother first read my sister and I the “The Little House in The Big Woods” when I was around seven:

When the fiddle had stopped singing Laura called out softly, “What are days of auld lang syne, Pa?”

“They are the days of a long time ago, Laura,” Pa said. “Go to sleep, now.”

But Laura lay awake a little while, listening to Pa’s fiddle softly playing and to the lonely sound of the wind in the Big Woods. She looked at Pa sitting on the bench by the hearth, the fire-light gleaming on his brown hair and beard and glistening on the honey-brown fiddle. She looked at Ma, gently rocking and knitting.

She thought to herself, “This is now.”

She was glad that the cosy house, and Pa and Ma and the fire-light and the music, were now. They could not be forgotten, she thought, because now is now. It can never be a long time ago.  

This to me sums up the magic quality of memoir – when my mother read us that book I was Laura Ingalls. Books allow you to live so many additional lives.

KC: Do you have a favourite genre to read -- or write -- in? What draws you in that direction?

Laura: My “comfort” genre is probably Regency Romance at the moment. I love Georgette Heyer and Jo Beverly in particular. I avoid reading memoir when I am writing memoir as I always worry about absorbing someone else’s voice. As an English Literature undergrad I went through years of being incredibly snobby about my reading –  I would only deign to read highbrow literary fiction that was shortlisted for the Booker, Orange, or the Giller. However, by my fourth year of my BA I actually stopped reading altogether. I just couldn’t handle one more obliquely drawn character that I couldn’t invest in emotionally (no matter how beautiful the language) or one more story about the holocaust or incest. Highbrow literature at that period was overwhelmingly depressing. I didn’t start reading again until my sister Suzanne insisted I read Diana Gabaldon’s Outlander series. I was so hooked that I am embarrassed to say I actually read Outlander and Dragonfly In Amber at stoplights on the way to taking my kids to preschool (NOT ADVISED). I still believe Diana’s books should come with some sort of FDA addiction warning like on cigarette packages. Thanks to Outlander, it finally hit me that what made me fall in love with books and reading in the first place was the craft of storytelling. I wanted to be transported to another place and often another time. I wanted to be invested in the lives of the characters. I wanted escape. I wanted emotion. I wanted imagination.

KC: This book is part of a series -- where do you plan to go next?

Laura: The “Grape” series will have six books in total (in order, the bold ones have already been published): My Grape Year, My Grape Paris, My Grape Escape, My Grape Village, My Grape Town, and My Grape Baby, plus a few of what I think of as “Memoir-ettes” (novella length memoirs): My Grape Wedding, My Grape Cellar (not akin to Twenty Shades of Grey, but rather about the 13th century wine cellar we renovated under the streets of Beaune), etc.. As you can see I do not write them in order. Whichever story is yelling at me the loudest is the one that gets written next.  See above re: my visceral resistance to linear thinking.

My paranormal romance trilogy is definitely a trilogy and the first book is about 85% written, although it needs a serious overhaul. I will probably finish the first book in this series once I finish My Grape Year, although it will really depend on which story is shouting the loudest at me then! I have to say I am intimidated to turn from memoir to fiction, as I know it will be a steep learning curve. That terrifies me and thrills me in equal measure.

KC: Why Indie publishing instead of the traditional route?

Laura: I actually wrote a blog about exactly this topic and here is the list of reasons why self-publishing was the right choice for me:

  1. I am incurably impatient
  2. I like being my own boss and want to choose my collaborators
  3. I had several ideas re: how to launch / market my first book
  4. I actually enjoy marketing / social media
  5. I had a web presence already built up thanks to graperentals.com
  6. Aspects of my books (i.e. my struggles with panic attacks / anxiety) didn’t “fit” with mainstream publishing. Several agents were interested in taking on My Grape Escape but they all wanted me to remove any mention of my mental health struggles. I felt my story would be inauthentic without this honesty, and I also felt removing them would be a betrayal of myself and anyone out there who also lives with any mental health issue. I wanted to show how it is not necessary to eliminate or “cure” life’s many challenges in order to live a rich, incredible existence.
  7. I wasn’t prolific when I began, but definitely writing more and faster was a goal. I felt I had far more than one book in me - self–publishing doesn’t work as well for people who only want to publish one or two books – although like everything, there are exceptions.
  8. I am happiest when working on projects from beginning to end. I’m definitely a “project person”
  9. I have ongoing health issues (a rare auto-immune disease of the liver and bile ducts known as PSC which means I will need a liver transplant sooner rather than later) that meant I did not want / need stress of having to meet other people’s deadlines and expectations.
  10. I have an allergy to authority in any form
  11. I wanted to donate 10% of all my after-tax writing-related earnings to PSC Partners for researching PSC.

KC: What's your favourite part of the publishing process? Why?

Laura: Writing a book is a hell of a slog. Still, there is something epic in the feat of writing a book that appeals to me - a bit like climbing Everest or rowing across the Pacific. Most days I write because I force myself, but there are moments when my imagination takes flight or I come up with an evocative turn of phrase or the perfect tempo of dialogue and I feel as though I have been plugged into a force way bigger and more awe–inspiring than myself. I call this "communing with The Great Mysterious". These moments are generally fleeting, and I can also experience them when by the ocean, eating a particularly scrumptious cheese, spending time with my family, meditating, or doing other creative work – painting, making beach glass mobiles, etc. but I get them fairly regularly when writing and they always leave me with a sensation of grace and oneness with the universe.  Who doesn’t need more of that?

Also when the box of paperbacks arrive for of latest book…holy moses is that ever satisfying! Worth every ounce of blood, sweat, and tears!

KC: Do you have a preferred format for your books? E-book vs paperback?

Laura: It is ironic that probably around 90% of my writing revenue comes from Ebooks (mainly Kindle) but I actually cannot stand reading books on any sort of screen. I am a diehard lover of paperbacks. For me, the tactile experience of reading  an actual book - paperback or hardcover - is like a sacred ritual. Besides, I already spend a lot of time in front of the screen writing and doing my social media stuff.  However, I have many girlfriends who are complete converts to ebooks and are permanently attached to their Ipad Kindle app or their Kindle. For them, the ebook thing actually has them reading way more.  It’s a personal preference and I keep my mind open. I love my Kindle readers.

KC: What's your favourite review one of your stories has received? [Share it, if you like!]

Laura: Here is a nice one that was posted just a few days ago on Amazon.com for My Grape Escape: "As an avid reader of mainly non fiction I was thrilled to find this author. As the book started I thought ho hum - yet another story about France, renovating the dilapidated house, etc...... However, after a few pages I was hooked. I agonized and laughed with the author till the end. Found her to be refreshingly open about her state of mind. Has a unique gift of describing situations and people. Immediately got the follow up book.

I especially love the ones where people tell me how my honesty about my struggles with anxiety disorder made them feel less alone with their own struggles in life – mental or otherwise. These always strike a chord with me and make me so glad I decided to stay true to myself, keep my book honest, and self-publish.

KC: Can you name a favourite Indy author or two, and recommend a book?

Well, I am VERY excited about KC Dyer’s upcoming “Finding Fraser”! I cannot wait to get my hands on the paperback of that. Martin Crosbie does lovely memoirs and his blogs about self-publishing are always so generous and helpful. I also love pretty much everything Chuck Wendig writes and he is a stellar advocate for writers everywhere. There are so many talented, insightful Indie authors out there…

KC: And to finish, can you give your best advice to someone starting out?

Laura: I would say the #1 piece of advice would be – FINISH! I kept writing and rewriting the first book in my paranormal romance trilogy for about a decade but could never finish. Then came the day I was diagnosed at age 39 with PSC and all of a sudden I was living with a rare, serious, and possibly terminal illness. My life completely changed in that instant. I started writing My Grape Escape the next morning and vowed to finish. I learned more in finishing and publishing My Grape Escape than I did in ten years of almost finishing my other writing projects. Resist the siren’s call of other projects until you finish your current one. It is as difficult as Odysseus and the Sirens at times, but put cotton balls in your ears, a huge sign beside your keyboard…whatever it takes - FINISH. My word-warrior motto is Write. Finish. Share. Repeat.  Here is a printable of that if you need a reminder http://laurabradbury.com/2015/01/28/the-word-warrior-mantra/  .

Also, I try to give myself a word count goal every day whether writing or editing. Usually it is 2000 words. There are many days where I don’t hit it – days when I am hospitalized because of my PSC, days when my three kids have caught contagious diarrhea, days when it is sunny outside and I simply must go beachcombing…life happens, but having a goal is something to shoot for.

 

Holy crow. Didn't I tell you Laura was great? Forget a font -- she is a RESEVOIR of great information...and inspiration, too.
Thank you, Laura, for taking part and for sharing your story so candidly. If you'd like to jump on the Bradbury Grape Bandwagon -- and who doesn't? -- you can find her books HERE.
Ready -- set -- GRAPE!
More soon...
~kc

 

Woo Cannot Fail, It Can Only Be Failed

水晶の結晶とグラスキャンドル Yesterday, the alternative health universe lost one of its stars, a charismatic Australian woman named Jess Ainscough, better known as the "Wellness Warrior". She died at the young age of thirty after seven years of trying to cure her very rare form of cancer by eschewing traditional cancer treatments and opting for alternative therapies, such as Gerson therapy which requires lovely things such as coffee enemas every four hours.

Jessica's death upset me. Dying at thirty before having kids, before marrying her honey, and before realizing so many dreams is a human tragedy. Also though, I am pissed off that she was both a victim and a perpetrator of a set of beliefs that pressures sick people to choose between traditional (western) medicine and alternative therapies (woo). Since being diagnosed with PSC I have felt this pressure in many subtle and not-so-subtle ways.

I will not lie, I love me some woo.

I have a meditation altar set up in my bedroom, complete with my healing crystals, a sellinite candle, and pieces of beach glass.

Franck said to me recently when he came upstairs to find me meditating in front of my lit candle (to purify cosmic energies), "all you're missing is an eagle feather."

"I know. I totally need one," I said.

I am a big fan of vision boards (on Pinterest) and live in the hope that the universe will manifest my wishes of a New York Times Bestseller, a TED speaking engagement, and a trip to Sanibel island with my mom to go beachcombing. I am a devoted patient of reflexology and a Reiki-type energy massage. I believe that acupuncture can be helpful in many situations, same for yoga and visualizations. I have even done a past life regression that took me back to not one, but three past lives. Fascinating stuff.

Most days I down a monster smoothie packed with kale, probiotics, hemp, and chia seeds. It tastes like stagnating pond scum, but I know it is good for me. Maybe my smoothie is more about nutrition than woo but the line between the two in the alternative health world is often very fine indeed.

Still, nothing annoys me more since being diagnosed with PSC than people (often people I barely know) suggesting that I go on a liver cleanse to heal myself or just think positively. The implication is, of course, that I could heal myself if I followed their suggestions and believed in it enough. If it didn't work, it would clearly be my fault because I didn't do it right.

I religiously did acupuncture and Chinese herbs for a year and a half after being diagnosed with PSC, with the full consent and knowledge of my hepatologist.

I became increasingly uncomfortable, though, with my Chinese Medicine Doctor. First of all, I could discern no positive effects of her treatment besides temporary relief of some symptoms like itching. My blood results were getting worse and I was clearly getting sicker. I was bothered that she kept blaming this on my traditional doctors, even though they were not treating me with anything at that time (the only available treatment for PSC is an eventual liver transplant which tends to be a one-shot deal).

When I started to move closer to transplant and decided to discontinue the herb portion of the C.T.M. treatment because it could eliminate me from transplant eligibility, she never let an appointment go by without telling me how she had cured other liver patients with herbs or how she regretted my decision to stop them. I was being pushed to choose between traditional medicine and alternative medicine and I resented it.

Despite my lifelong love of crystals and the occult I never, not for a moment, considered abandoning western medicine in favour of woo for my PSC. It would not be my reflexologist who would be performing life-saving transplant surgery, after all. I sought out the best care I could find, which means for me flying to Calgary on a regular basis to meet with a hepatologist who has the fourth largest PSC practice in the world and is a leader in the field, and being assessed by the world-renowned liver transplant clinic in Toronto.

I do not think my PSC is a "gift" from the universe or was sent to me for me to learn some cosmic lesson. I make a conscious choice to give my experience meaning (I'm a big fan of  Vicktor Frankl) but I see PSC for what it is - a nasty, cruel disease that strikes indiscriminately, just like cancer and ALS and heart defects and all the myriad ways a human body can break down.

Traditional medicine is by no means perfect. I have been subjected to skilled but inhumane doctors who really shouldn't be allowed to talk to patients or, in fact, other human beings. At all. Under any circumstances. Things are misdiagnosed or diagnosed too late, treatments can be brutal and sometimes fatal. Sometimes, even though both doctor and patient have tried their best, people die. When this happens I remind myself that we are all headed to The Terminal on this bus of life, it is only a question of how and when.

I have seen fellow PSCers die. They have thought positively and fought until the bitter end and done everything "right". Most often their deaths can only be blamed on one thing -  this cruel disease. Often life or death boils down to the one thing that few want to accept - sheer dumb luck.

I have also, though, seen many lives saved by Western medicine. People who go from deathly ill to thriving after a liver transplant, or who recover from bile duct or liver cancer with the correct protocol. There are a lot of these miracles in our community.

So while I love my woo, I refuse to buy into the belief that woo alone will heal me, or that western medicine is evil. People who damn western medicine and promote woo will say that it is precisely because I don't believe that woo will not heal me. This, to me, is the crux of my problem with woo.

Woo cannot fail you, you can only fail the woo.

If chemo and surgery don't work, nobody is going to blame you - they are just going to blame your disease for being so goddamn unforgiving. If you opt for woo to the exclusion of traditional medicine for a serious disease and you die anyway, like Jess Ainscough, many people whose theories she championed (like those Gershon folks) will probably say that somehow she didn't do things right, or thoroughly enough, or her beliefs were too flimsy. That is bullshit. Who needs more guilt in their life, especially when struggling with a serious illness?

We can do our best to positively influence our lifespan and our quality of life, but the truth is we cannot control death.

We can do our best - trying to eat well, doing things that make us feel fulfilled and happy, meditating, yoga-ing, praying to our crystals, consulting the best specialists we can find and undergoing recommended treatments. We can do all of this and still die. Hopefully though somewhere along the way it will sink in, as it has done for me (finally!), that improving the enjoyment of my day to day life is even more important than trying in vain to stage-manage its longevity.

We cannot know how our stories will end. We cannot control the uncontrollable. Anyone who tells you different is trying to sell you something. Sadly, Jess Ainscough was not only a victim of this nefarious sales pitch, but in time ended up inflicting it on countless others struggling with life-threatening disease.

Stay open. Stay skeptical. Remember this - a closed mind is a dangerous mind.

The Word Warrior Mantra

IMG_0084 This is my mantra and the mantra of my badass tribe of writers founded at last year's wonderful SIWC Writers' Conference (listen to my keynote speech here on my "Press" page all about how, after a decade of false starts, I finally became a writer who FINISHED and PUBLISHED books). We call ourselves the #wordwarriors - we feel the fear and write anyway. Join us on Twitter!

Badass Surrender

Kapitulation Last Monday I was sitting in a doctor's office at the Liver Transplant Clinic in Toronto, listening to the hepatologist tell me that although a transplant would probably be in my future and was still the best case scenario for me, I was still "far too healthy for a transplant yet."

My first instinct was to argue my case.

I had ample ammunition to do so. My recent MRI showed that my PSC is progressing fast and that my bile ducts are sick, sick, sick. I have cirrhosis. I have a fibroscan score of 22 which means my liver has the pliability of a crusty, deflated football. I have to take antibiotics every day to ensure that the cholangitis infection that has now taken permanent residence in my bile ducts is kept  at bay, and a different type of antibiotic to control the suicidal itching. Most of all, my PSC guru in Calgary told me in his peppy Australian accent when I saw him at the end of November, "Well Laura! I think it's time to get you a new livah!".

Since my PSC diagnosis in 2012 I have had to fight, fight, and then fight some more to access the best care. PSC, like other "orphan" diseases, is so stupidly rare that most doctors I come across in Victoria have only experienced a couple of other PSCers at best.

Funnily enough, the third book in my "Grape" series which I am writing right now (entitled MY GRAPE YEAR) is about breaking rules. The thematic resonance with my present battles are unmistakable.

Contrary to what many people seem to believe, I did not get to Toronto by luck or by the benevolence of a medical fairy godmother / concierge service.  Rather, I accessed Toronto by offending doctors, becoming that pain-in-the-ass patient that makes medical assistants and nurses roll their eyes, refusing to take no for an answer, and nagging, pushing, and trodding (repeatedly) on the toes of the medical establishment. When the full extent of the parlous state of hepatology in British Columbia finally sunk in about six months after I was diagnosed, I made a conscious decision to discard my upbringing of being polite and not offending anyone. My survival trumped the need to be "nice" by a long shot.

I became a put-yer-dukes-up PSC badass. I did my research as though my life depended on it, and it actually (scarily) did on several occasions. I learned that Toronto was a world leader in living donor liver transplants, that they did the biggest volume of this very specialized type of surgery in North America, and depending on who I consulted, perhaps the world. I discovered that in over 700 surgeries they had never lost a donor and that doctors from all over the world flew in to learn how to duplicate the success of their program. Unfortunately nobody has a crystal ball to see into the future, but I felt with Toronto I was getting my best chance of getting through to the other side of this whole PSC thing.

Yet, after all that, at my first doctor's appointment in Toronto here was the hepatologist telling me that maybe it wasn't time for a transplant after all? Whiskey Tango Foxtrot?!?!?

My first instinct was to do what I had been doing for the past twenty-four months, to fight back. Yet about half way through that appointment, when the hepatologist was explaining the risks associated with transplant which, make no mistake about it, are substantial, it dawned on me that his arguments against transplant right now were not without merit.

Throughout that intense week I lost count of the doctors and specialists I consulted (not to mention the vials of blood drawn from my veins). The Toronto specialists were, without fail, kind and incredibly competent. Some felt I was ready for transplant right now whereas others thought it could maybe wait a while longer.

The upshot was that all the people I saw were going to meet with all my test results and make a collective decision about my case. My knee jerk reaction was to feel frustrated and impatient with this difference of opinion.

Then, I thought about it some more.

Having my case debated by so many experienced doctors in one room was exactly what I had been fighting for. They were all world leaders, their collective knowledge and expertise was mind-blowing. They were going to try to make the best decision for me and the fact that there was a difference in opinion meant that my case would be looked at in detail.

Surrender seemed like the most unnatural thing for me to do, but as it turned out surrender was the most badass choice I could make right then.

You do everything you can humanly do and then you have to do the hardest thing of all - relinquish control to the experts you have gathered in your corner and, even more importantly, to what I have come to think of as "The Great Mysterious."

So this week here I am, back in Victoria (where it is not -19 C, hooray!), practicing badass surrender to the best of my ability. While I wait for the decision to be made in Toronto I am feeling a very curious and unfamiliar feeling of peace. I have no idea how long this astonishing (for me) state of zenitude is going to last, but it has made me realize that I must become better acquainted with this whole badass surrender thing. It may just have the potential to be one of the most powerful weapons in my repertoire.

 

 

 

The Flotilla of Doubt

Wave This has been the oddest New Year for me. I have never in all my life been poised to embark on such a vast sea of uncertainty.

I have absolutely no idea where I will be when Dec 31, 2015 rolls around. Very ill? Very healthy? Somewhere in between? With a new liver? With my same, sick liver? Dead? These are all distinct possibilities.

I incorporated a New Years ritual suggested to me by one of my favorite fellow PSCers into one of my regular beachcombing excursions at the dawn of 2015. I wrote down all the things I was worried about on little pieces of paper (biodegradable paper, of course) and sorted them into two piles:  1) Things I Can Control, and 2) Things I Cannot Control.

The Thing I Can Control pile contained precisely three pieces of paper.

The Things I Cannot Control Pile was a mini Everest.

I filled my pockets with Things I Cannot Control and walked down to the beach. When I got to one of my favorite outcropping of rocks I read each one out loud, crumpled it up, and threw it in the emerald-green waves. Here is a random sample:

That they will find liver / bile duct cancer that would mean I am not eligible for transplant.

That some other health issue will crop up that will mean I am no longer eligible for transplant.

That I will fail the psychological component of the transplant testing and they will take my incapacity for denial and dark humour as signs that I am, in fact, clinically insane (and therefore, no longer eligible for transplant).

That I will die during the transplant surgery (my doctor took great pains to drive home the point that 10-12% of people do not make it through the actual surgery itself).

That if I survive the transplant surgery my body will try to reject the new liver.

And so on and so forth...

Soon, there was a flotilla of Thing I Cannot Control papers bobbing around in the water. I began to climb towards the next beach but, when I looked over my shoulder, I saw that instead of floating out to sea the Things I Cannot Control were hugging close to shore, following me like an attacking fleet from the Napoleonic wars. I grabbed a nearby piece of driftwood to splash them away.

"Go away!" I shouted. "Shoo!" Sweat broke out on my forehead. These Things I Cannot Control were stalking me. I wanted them GONE.

I scrambled across the rock, hopped down onto the next beach, and found a bigger piece of driftwood. I lay in wait for the flotilla to come around the curve of the rock.

I waited there, with my driftwood weapon poised for battle, for several minutes before I started to feel like a complete dork. The flotilla still did not round the corner of the rock as expected. Where had it gone?

I hopped up back on the rock where I had thrown the papers to get a better vantage point. My eyes scanned the green waves but the Flotilla had simply vanished.

Where had they gone? Had they sunk? Had they floated off in another direction? One thing was certain, they had disappeared.

And then, on the top of that rock at my favorite beach I experienced an overwhelming wave of peace. I was going to be okay. I didn't know how, or what path would take me to okay, but I knew I was going to be okay.

Now, while Dread and me are childhood friends, I have just met Faith in passing. I would describe her as a "recent acquaintance".

My knee jerk reaction was to doubt my moment of grace, to try to explain it, to shoo it away just like my paper flotilla of uncertainty. As much as the Things I Cannot Control were scary, daring to have faith in the unknown was weirdly even scarier.

I know, deep in my soul, that learning to have faith - even when all signs point to the contrary - is one of the lessons I am supposed to learn in this lifetime. To have faith when there is no proof to support it. To have faith that all is unfolding as it is should. To have faith that everything makes sense on some higher plane that my human brain is simply not equipped to comprehend.

Yet Faith still scares the bejesus out of me.

Still, I thanked the ocean for taking care of my Things I Cannot Control for me. I wouldn't say my Flotilla of Doubt had transformed into a Flotilla of Faith yet, but it was a start.

 

 

 

We Have A Gagnant!!!

MAISON, GIVRE, NOEL 040 copy Sorry I am a few days late in announcing the winner to my latest "Christmas in Burgundy" contest. My trois saucisses have all been home from school and chez Germain has been even crazier than usual.

This lucky person (who happens to be a femme) has won a free week in her choice of any of our Burgundy properties, to be redeemed whenever. Pretty sweet, n'est-ce pas?

And all she needed to do to enter was write a review for My Grape Village on Amazon.com . Thank you to the many lovely people who wrote reviews for my books and continue to do so. It is so appreciated and I read every single one.

So without further ado, the name of our gagnante is KAREN MACINERNEY of Austin, Texas!!!!!!!!

Congratulations ma belle! For the rest of my tribe, stay tuned, I'll be concocting another contest soon!

 

 

 

Lovely New Review on Chouette France Blog

Screen Shot 2014-12-29 at 5.39.50 PM Definitely check out Jacqui's blog "French Village Diaries" if you need a recommendations (or twenty) for the best books about life in France. Jacqui is a voracious reader of this genre and a thoughful reviewer. I subscribe to her blog feed and reading her posts and book reviews are always a treat.

And today is a great day to check it out, as she reviews MY GRAPE VILLAGE. Just click here to travel to the French countryside without even buying a plane ticket! 

 

Flashback Friday - Christmas 2008

DSCN2980 I was going over my old blog and found this post of the Christmas jaunt we took to Colmar, Alsace in December 2008 when Clem was under a year old. If you are in France during the Christmas season and can make it up to Alsace do not miss the Christmas markets and celebrations up in this unique corner of France. Stunning and makes for fantastique memories.

French Christmas Food & Wine Porn!

IMG_8893  Some Christmas french food & wine porn for this festive season from My Grape Village. Enjoy! 

*****

The presents were quickly disposed of on Christmas morning. Charlotte and Camille ripped off the paper and squealed over their stuffy puppies and Polly Pockets. They ate a prodigious amount of papillottes and their enjoyment of the day didn’t seem to be at all affected by the torn wallpaper on the walls or the ugly floor tiles. The tree and the decorations and the fact that the Père Noël came during the night, drank all the ratafia, and ate the papillottes made it a perfect Christmas in their eyes. A big Christmas was fun, but a modest Christmas had its rewards too. Fewer gifts made us aware of what was important, and increased our appreciation of what we did have.

Stéphanie told us to be at her house by 11:30 for the apéritif. She would not hear of me bringing anything to contribute to the Christmas meal. When I asked Franck why she was turning down repeated offers of help he said that it was her pride as a hostess to do everything herself. I wondered briefly why I had never seemed to possess that particular brand of domestic pride.

Tom and Lola greeted us at the door, jumping up and down and telling us about the presents Père Noël had brought them. The most popular was Lola’s stand up microphone. The four cousins rushed upstairs to her bedroom try it out. By the time Thierry had poured us each a flute of mousseux the strains of very loud but out-of-tune voices floated down the stairs. We were the last ones to arrive, There was Steph and Thierry, Thierry’s parents, his aunt from Dijon, Franck’s parents and of course La Mémé, equipped with several exquisite shawls to stave off drafts despite the roaring fire. We caught up with Thierry’s parents and his aunt and Stéphanie passed around homemade gougères – crunchy on the outside and rich and airy on the inside - made with Mémé’s recipe.

Eventually Steph went back in the kitchen and André went to help her. I was shooed away. We were told to sit down at the table, stunningly decorated with tones of red and gold, and an abundance of freshly picked holly.

Steph handed out the plates, beginning with Thierry’s aunt and Mémé and then moved on down the line in order of age. On each plate were two artfully arranged slices of foie gras, two slices of toasted brioche, and a scoop of fig jam.

Thierry busied himself with filling our glasses with a dark yellow Sauternes, perfectly chilled.

We waited until Steph and André were seated at the table and then Stephanie said “Bon alors, Joyeux Noël et bon appetite!” I scraped some foie gras on a piece of toasted, buttery brioche, topped it with fig jam, then washed it down with the beautifully paired Sauternes. The foie gras was silky smooth of my tongue, enhanced by the sweet pops of the fig jam and the honeyed richness of the Sauternes. They mingled together to form a holy trinity of yum. The table fell silent for several minutes as everyone relished this first sublime bite of the holiday meal.

We talked about preparing the foie gras which Stephanie had done from scratch this year - well not completely from scratch - she hadn’t force fed a goose but she did bought a freshly fattened goose liver and prepared, deveined, marinated and cooked it herself.

“Do you like it Laura?” she asked. I knew I should feel guilty about the force-fed goose, but all I could think of was how it was so incredibly delicious.

C’est délicieux,” I answered. Why did nothing in Canada taste this satisfying? Why were flavors never quite so carefully and artfully matched? Here on my plate and in my glass was the perfect harmony of sweet and savory. The crunchy butteryness of the brioche and the syrupy fig jam highlighted the savory onctuousness of the foie gras. Individually all these things were delicious, but married together they were sublime. There wasn’t a lot of the food on the plate but because it was so perfect it was all that was needed.

We took a good hour nibbling away at the first course. The children came down and they all ate a full plate just like the adults, all except Lola who was turning out, much to the despair of Franck’s family of gourmets, to be a picky eater. I wasn’t sure if my kids realized if they were eating fattened goose liver or, if they did, whether they would even care.

Without me realizing exactly when or how, their eating habits had improved drastically since we moved here. They sat down to eat three proper meals a day and a snack when they got home from school around five o’clock. There were still a few things they didn’t like, spinach for Charlotte and brussel sprouts for Camille, but they would try more or less anything else, mainly because the kids around them had to try everything too. Also, I believe the fact that most things they tried actually tasted good inspired them to be adventurous.

Charlotte and Camille proclaimed that the foie gras was delicious and declared it one of their new favorite foods, then asked if they could go upstairs to play. The cousins disappeared again, and Steph and Thierry and André took their time doing the dishes from the first course while Steph periodically checked the oven.

Finally she removed what had been in there and the house was filled with an irresistible smell. It was a chapon - a rooster castrated at a young age filled with a chestnut and pork stuffing.

Stephanie served this with a side of chestnuts for anyone who wanted them. I had grown up in Canada seeing chestnuts cover the sidewalk every autumn but I had never tasted them before or, indeed, ever seen anybody eat them. It was in France that I first discovered them and realized how much I loved their earthy taste and texture. Stéphanie also served her bird with a reduced jus from the cooking. Thierry, meanwhile, had taken out several bottles of Hospices de Beaune wine and served one that was a Pommard premier cru.

He gave it to Franck to taste. Franck swirled it around in his glass, sniffed, and swashed it around his mouth and proclaimed it perfect. No one rushed on to anything else, and each plateful was just the perfect amount of flavors to savor without overwhelming the palate.

I thought back to our Christmas dinners in Canada. They were joyous affairs, but it was always such a race to get everything on the table at the same time; the turkey, the stuffing, the brussel sprouts, the scalloped potatoes, and the green beans. Everybody filled their plates and rushed to the table to eat before it got cold (which it inevitably did). The flavors were good, but there were too many of them at once, and the whole thing was over far too fast. Afterwards, everyone sat back with prodigious stomachaches and a kitchen full of dishes to clean.

The protracted nature and the small portions of meals in Burgundy meant that everything was properly savored. It forced everyone to slow down. Slowing down while eating, I realized now, was key to true appreciation and enjoyment of food. There were no distractions apart from the flowing conversation.

After the chapon came a trou normande in the form of a lime sorbet with strong alcohol poured over it. This was, according to French belief, the secret to digesting well and making more room in our stomachs for the cheese and dessert courses.

The fromage platter was massive, and included a truly pungent and perfectly oozing “Ami de Chambertin, a half round of Cîteaux, and a crumbly and salty Cantal sheep’s cheese amongst other offerings. Here too, the different textures and tastes of the cheeses riffed off each other creating an amazing taste experience. For the wine, Thierry served another Pommard from les Hospices that was groaning with ripe fruit flavours and structured tannins – absolutely the perfect foil to the cheeses.

Dessert came sometime after, along with a vin de paille from the Jura, a sweet intensely yellow wine that used half rotten grapes that had been aged on hay. Its richness complimented Mémé’s two “buches de Noël”, one mocha, one chocolate. Next came a praline kouglouf made by Franck’s father, served with the tiny china cups of strong espresso and bowls of papillottes and clémentine oranges.

As I was unpeeling my second orange the conversation ranged from wine to the best markets in the region. Thierry’s father, nicknamed “Le Cadou” so insistently that I had never learned his actual name, was a loyal attendee of the Friday morning market in Nuits-Saint-Georges where he went without fail to visit with friends and his favorite merchants and to buy whatever struck his fancy. Franck’s favorite market remained the Monday morning market in Louhans that featured veal’s brains and chilled white wine for the traditional pre-market breakfast. Mémé had always liked the market in the nearby town of Chagny. I argued for Beaune even though Franck’s family didn’t like the fact that it had seen an influx in tourists over the past decade during the summer months.

I glanced at my watch for the first time that day. “It’s ten o’clock at night!”

Indeed, darkness had fallen over the vineyards behind Steph and Thierry’s house a long time before, but somehow I didn’t have the impression of time passing. We had been at the table for almost twelve hours.

“A perfect Christmas Day,” Franck said, rubbing his stomach and reaching across the table to caress my palm.

 

I'll Take A Personality Transplant, Please...

b37f2b3a5583c8e00fdd6da426231978 Every morning since being diagnosed with PSC two and a half years ago I wake up thinking, "I totally cannot handle this. Life gave this disease to the wrong person."

I often joke that what I need even more than a liver transplant is a personality transplant. Like most jokes it contains an uncomfortable dose of The Truth.

It's not that I would wish this shitty auto-immune disease on anybody else, or because I harbour some sense of superiority that makes me think I deserve better. It's not even because of the exquisite irony that I manage four vacation rentals in the french vineyards and am the wife of a Burgundian and can no longer touch a drop of wine (but somebody up there certainly does have a twisted sense of humour). Rather, I yearn for a personality transplant because most of the time - especially on days like today when I have medical stuff looming on the horizon and am frankly not in a felicitous mental state - I feel woefully ill-equipped to deal with this disease.

Through the PSC community I have come into contact with people who possess a deep, unshakeable faith that they will be fine in the end. I'm always amazed by this. Have they always had this certainty? Where on earth does it come from? More importantly, I'd like to order some of that please.

I've also come into contact with people who are brave...like, superhero brave. They endure painful treatments and what would for me be torturous uncertainty with a kind of nonchalance that an olympic skier would feel going down the bunny hill. They say they never feel scared and, stranger still, I suspect they are actually telling the truth. I'd like a piece of that too.

There are also the people who just "carry-on" in the best of the British tradition and decide that they are not even going to really consider themselves as being sick at all, even when diagnosed with things like liver cancer. They just think "Crikey. That's a spot of bother." Wow. Yes, I'll also take one of those. 

Then there are those lucky, lucky souls who seem to have been born without the worrier gene. When I ask if they worry about cancer, post-transplant rejection, etc. they answer, in all honesty "no". When I ask how...why...how the hell they DO that, they say, "I decided there was no point to worrying, so I just don't." What!? You can actually turn off that switch in your head!?

So there's the zen buddhas, the biblical matyrs, the superheros, and then...there's me.

I am such a hypochondriac that Franck actually had to ban me from watching medical dramas like ER, House, and even Gray's Anatomy a decade ago. My suggestible imagination meant that any illness I saw on-screen would manifest itself immediately in my body as symptoms, which usually culminated in a deeply humiliating ER visit within a few hours. When I was diagnosed with PSC one of my first reactions was "Goddamit! I forgot to imagine that disease. That's why I got it!" Clearly, I also have a bit of magic-thinking craziness going on in this head of mine.

I worry and I ruminate. My mind gets stuck in painful thought patterns. I am vigilant about each symptom and fret about new ones. I wish beyond anything that I could just turn off that worry switch, but I have tried and tried and tried but mine appears to be welded in the "ON" position.

I get scared. Like really, really curled-up-on-the-bed-in-a-foetal-positon scared. When I'm like this, my mind projects terrifying films for my own personal viewing pleasure on a continuous loop.

I don't speak the language of denial. I can't pretend that I am not going through this. If I could, I would, but my powers of denial are puny.

There are so many people so much better equipped to deal with PSC than me - pretty much everybody, actually.

However, I have discovered a few arrows that I use again and again to help me fight the mental and physical impact of PSC.

One is my dark sense of humour that I share with Franck. There isn't much we can't joke about, especially if it is in bad taste. When the grim things get too threatening, we deflate them with our laughter.

Another is my need to create - write, paint, glue beach glass on wreathes...whatever takes me out of my own head for long enough to be able to take a breath again and re-engages me in life.

My defiance is one of my strongest arrows. I fall, often and badly, but there is something in me (what I call "my little spark of fuck you") that forces me to pick myself up again.

Another arrow that I have found shoots straight and true is my need to connect with others, to listen to their stories and journeys and to share mine in all its rawness. This creates a net of support that makes me feel supported and I hope makes others feel supported as well.

It's the same with parenting - I am good about reading with my kids, but lamentable at keeping track of the various lunch forms, soccer try-outs, and teacher's gifts that come with their busy lives. I love doing crafts with them but am doing a far from stellar job of protecting them from swear words and age inappropriate movies.

With my writing, I appear allergic to plotting and formatting, but I have always had an ear for dialogue and an instinct for how to end a chapter.

I guess the hard lesson I'm learning is that going through life most of us feel ill-equipped. Bemoaning our shortcomings is a waste of time better spent on cultivating our strengths, even if they seem like meagre offerings.

This is far less messy than a personality transplant. Besides, if we had a different set of arrows in our quivers, we wouldn't be ourselves anymore. That, I know, would be a terrible shame.