creativity

On Panic Attacks and Creativity...

panic-400x266 I had a humdinger of a panic attack last Wednesday. Many readers ask me after reading My Grape Escape and My Grape Village whether I still get them. Short and honest answer - yes, as last Wednesday proves, I certainly do.

I no longer waste precious time and energy trying to eliminate panic attacks from my life. I have been having them, after all, at random intervals since my mid-teens. They come. They go. They are always epically unpleasant and unwelcome.

I no longer believe they happen for a reason. I have come to the conclusion that searching for triggers or reasons for my panic attacks is a colossal waste of time.

On Wednesday, I was just sitting on the couch talking to a friend on the phone when my heart started beating faster than usual. The anxious part of my brain seized on this and started going, "Why is your heart beating faster? Something must be wrong! Redalertredalertredalert!!!"

Within three minutes my hands were shaking and my mind was spinning in that hellish anxiety vortex, making note of every uncomfortable physical sensation, amplifying it by approximately a million, and creating a logical case for my imminent demise (or worse yet, being trapped in a situation I can't control aka Just Kill Me Now).

Even though I consider myself a writer, I find myself at a loss for words when I try to describe the intensity and sheer terror of a panic attack to anyone who has not experienced one before. Conversely, when I talk about panic attacks with people who have experienced them, words are not necessary. I can just tell by looking in their eyes that they get it.

Even though I hate them I have come to a place of acceptance that they stem from a glitch in the way my brain is wired. I think we ALL have glitches in how our brain is wired. Some people have the depression glitch, some people have the jealousy glitch, some people have the fear-of-intimacy glitch...as for my brain, I suspect my panic attack glitch is the same or closely related to the part of my brain that allows me to imagine and write.

I am no longer ashamed of my anxiety. Indeed I think the stigma around mental health is one of the most corrosive forces in existence. However, I certainly don't want to feed my anxiety by treating it like the most exotic, fascinating animal in my own personal zoo either. I think my creativity, love for Star Wars, and humour are all vastly more interesting than my anxiety. Still, panic attacks are part of my emotional hard-wiring and chances are I will most likely have to co-exist with them for the rest of my life.

Something interesting, though, has been happening in the midst of my panic attacks since I began taking my writing and creativity seriously. In the middle of my Wednesday anxiety roller coaster ride, in the midst of my shaking hands and my pounding heart and my spinning head full of thoughts of certain and imminent doom, another little voice popped up. I like to think of this particular voice as the voice of my creative self.

"Remember Tillly?" it whispered to me (Tilly is the protagonist in my paranormal romance - she doesn't suffer from anxiety disorder but she does experience plenty of well-warranted fear). "You have to remember how you are feeling right now. How exactly is your heart pounding? What muscles are contracting in your chest so it feels like you cannot take a full breath? What is making you so viscerally uncomfortable right now? You have to make note and remember so that you can depict Tilly's fear more effectively."

One of the things that I am trying to learn through my mediation practice is to create some distance between myself and my thoughts and physical sensations that are always, even though they never feel like it at the time, transitory. Meditation encourages us to be curious about our thoughts and feelings without judging them.

Creativity does the same thing. By looking at my panic attack-y feelings and thoughts as a potential writer hoping to harvest them for future use, I create some much-needed space between myself and the deeply uncomfortable sensations my crocodile brain is creating for me.

The sensations are still wretched, but having curiosity about them brings a glimmer of transcendence. And then, when I actually use the material, which I always do sooner or later, the circle is complete. I have used my own misery to do a better job of writing and to hopefully make others who have felt profound visceral fear (and who hasn't?) feel less alone.

In other words, for people who have managed to carve out a creative outlet for themselves, even the really, really bad stuff is useful. Through our creativity we make even the unwanted and the uninvited serve a purpose. As I have said before, IT'S ALL MATERIAL.

I am not a subscriber to the belief that bad things happen for a reason, but I DO believe that we can choose to give even the yuckiest things meaning. This ability, in fact, is one of the things that makes us uniquely human.

Creativity won't make my panic attacks disappear for good (godammit), but it does make them slightly easier to cope with, and remains one of the most best ways for me to render useful something that is inherently useless.

Badass Surrender

Kapitulation Last Monday I was sitting in a doctor's office at the Liver Transplant Clinic in Toronto, listening to the hepatologist tell me that although a transplant would probably be in my future and was still the best case scenario for me, I was still "far too healthy for a transplant yet."

My first instinct was to argue my case.

I had ample ammunition to do so. My recent MRI showed that my PSC is progressing fast and that my bile ducts are sick, sick, sick. I have cirrhosis. I have a fibroscan score of 22 which means my liver has the pliability of a crusty, deflated football. I have to take antibiotics every day to ensure that the cholangitis infection that has now taken permanent residence in my bile ducts is kept  at bay, and a different type of antibiotic to control the suicidal itching. Most of all, my PSC guru in Calgary told me in his peppy Australian accent when I saw him at the end of November, "Well Laura! I think it's time to get you a new livah!".

Since my PSC diagnosis in 2012 I have had to fight, fight, and then fight some more to access the best care. PSC, like other "orphan" diseases, is so stupidly rare that most doctors I come across in Victoria have only experienced a couple of other PSCers at best.

Funnily enough, the third book in my "Grape" series which I am writing right now (entitled MY GRAPE YEAR) is about breaking rules. The thematic resonance with my present battles are unmistakable.

Contrary to what many people seem to believe, I did not get to Toronto by luck or by the benevolence of a medical fairy godmother / concierge service.  Rather, I accessed Toronto by offending doctors, becoming that pain-in-the-ass patient that makes medical assistants and nurses roll their eyes, refusing to take no for an answer, and nagging, pushing, and trodding (repeatedly) on the toes of the medical establishment. When the full extent of the parlous state of hepatology in British Columbia finally sunk in about six months after I was diagnosed, I made a conscious decision to discard my upbringing of being polite and not offending anyone. My survival trumped the need to be "nice" by a long shot.

I became a put-yer-dukes-up PSC badass. I did my research as though my life depended on it, and it actually (scarily) did on several occasions. I learned that Toronto was a world leader in living donor liver transplants, that they did the biggest volume of this very specialized type of surgery in North America, and depending on who I consulted, perhaps the world. I discovered that in over 700 surgeries they had never lost a donor and that doctors from all over the world flew in to learn how to duplicate the success of their program. Unfortunately nobody has a crystal ball to see into the future, but I felt with Toronto I was getting my best chance of getting through to the other side of this whole PSC thing.

Yet, after all that, at my first doctor's appointment in Toronto here was the hepatologist telling me that maybe it wasn't time for a transplant after all? Whiskey Tango Foxtrot?!?!?

My first instinct was to do what I had been doing for the past twenty-four months, to fight back. Yet about half way through that appointment, when the hepatologist was explaining the risks associated with transplant which, make no mistake about it, are substantial, it dawned on me that his arguments against transplant right now were not without merit.

Throughout that intense week I lost count of the doctors and specialists I consulted (not to mention the vials of blood drawn from my veins). The Toronto specialists were, without fail, kind and incredibly competent. Some felt I was ready for transplant right now whereas others thought it could maybe wait a while longer.

The upshot was that all the people I saw were going to meet with all my test results and make a collective decision about my case. My knee jerk reaction was to feel frustrated and impatient with this difference of opinion.

Then, I thought about it some more.

Having my case debated by so many experienced doctors in one room was exactly what I had been fighting for. They were all world leaders, their collective knowledge and expertise was mind-blowing. They were going to try to make the best decision for me and the fact that there was a difference in opinion meant that my case would be looked at in detail.

Surrender seemed like the most unnatural thing for me to do, but as it turned out surrender was the most badass choice I could make right then.

You do everything you can humanly do and then you have to do the hardest thing of all - relinquish control to the experts you have gathered in your corner and, even more importantly, to what I have come to think of as "The Great Mysterious."

So this week here I am, back in Victoria (where it is not -19 C, hooray!), practicing badass surrender to the best of my ability. While I wait for the decision to be made in Toronto I am feeling a very curious and unfamiliar feeling of peace. I have no idea how long this astonishing (for me) state of zenitude is going to last, but it has made me realize that I must become better acquainted with this whole badass surrender thing. It may just have the potential to be one of the most powerful weapons in my repertoire.